I did swim that night (Friday) but I was so tired Saturday that I didn't swim (rare for me- if the weather permits, I love to swim). I had to push myself to swim on Sunday. Today I am a bit better, not as sleepy- more like the MS fatigue I am accustomed to.
I think I might have stumbled upon my answer while talking with my sister Sunday afternoon. She said it sounded to her like how she felt during her two pregnancies as her body was using energy to make more cells than usual. (I have never been pregnant).
We postulate together that this sleepiness may be related to the increased activity of building new WBC and other immune components that were wiped away with the Lemtrada treatment. This is only our guess but it 'sounds right'.
She encouraged me to blog about it- so that others might know to expect this in their Post-Lemtrada weeks. So here it is. I don't really know what it means- but it is the reality of the past few days.
My dad sent this email commenting on this blog- I guess I come by this reaction 'honestly' (genetically)
"Subject: Pregnant make you Tired? Yes.
Read your blog. Just so you know, when your mom got pregnant she went into hibernation. Especially with your brother. She would drag herself home from teaching, eat a little dinner and go directly to bed. Really up set poor FB (our German Sheppard, short for Financial Burden- he was a Christmas gift). He would go to her bed and then come up to me and whine. He Got over it after a week or two but for me it was like being a bachelor for nine months. "
I love my family and appreciate the support from all of you!
This fatigue has been compounding day to day. Previous to this week I could feel each swim was easier and I was building endurance with each workout. But this week I seemed to be slipping backward in the fatigue department more and more each day. Instead of feeling better after each evening swim it became a great effort just to finish my regular swim.
Yesterday was my birthday, so I decided to take the whole day off (I can hear all the people cheering who are always telling me to slow down- you know who you are!). I didn't log in to work from home, I didn't clean or cook. I didn't even fold laundry! I read, took care of our 'boys' (4 chihuahuas) and generally rested.
Today I feel much improved. I think most of this recovery is about listening to your body each day. Do what you can, but don't push yourself. We all know this as people living with MS but a reminder from our body- or a friend- is a welcome wake-up call.